Knockout ALD is proud to present our 8th Annual Run for ALD, Cure the Boys on Nov. 23rd, a 5K/1 mile run/walk homegrown event, (with a virtual option!) the only one of its kind in the St. Louis area that raises awareness and funds for adrenoleukodystrophy (ALD).
• What is ALD? ALD is a very progressive rare disease that most severely affects about 1 in 17,000 boys, many of whom suffer severe neurological symptoms that often result in death if undiagnosed and not treated very early.
• Why? Our event is inspired by the vision of our son Nicholas who had a successful bone marrow transplant to halt the progression of his cerebral ALD at the University of Minnesota Children's Hospital (a world leader in transplants and ALD research). 100% of the funds raised from our event will directly benefit the University of Minnesota's Leukodystrophy Center for ALD Research to support their research efforts for early identification, more effective therapy and treatment options, and hopefully one day a cure for this devastating disease.